Linking Clinic and Hospital Data with Patients and Families

Background:  Patient powered research presents unique opportunities to blend patient-derived data with clinic and hospital data. States are currently developing health information exchanges that can link with such data to provide range of measurable health outcomes.

Objectives:  Linkage of patient and clinical data for broad measurement of health outcome.

Methods:  Current models of linkage of patient-report and clinical data will be reviewed, including active projects in the states, including Michigan.

Results:  NA

Conclusions:  Trusted health information exchange, as being developed in PCORnet, will provide new research opportunites for the health community, including autism researchers.